Here’s the new update:
I’ve been cleared for third infusion for today (5/21). It’s good news, just feeling anxious about the side effects. The weekend, day 3-6 are rough. Thankfully it’s summer and being outside really helps.
Also some positive news is my CA125 number have dropped from 37,000 (extremely high) to 1,342 so the infusions are working. The goal is to get to under 20 by end of summer.
They changed my surgery date to July 9 so I can have a full 21 days of recovery after my fourth infusion (June 11).
I will have about a five+ day hospital stay after surgery due to the hysterectomy/HIPEC procedure and need to be in ICU for recovery. Then transition home for the month of July and when recovered I will do some final infusions in August. Goal is to be NED (no evidence of disease) by September.
Of course, this is just a rough draft plan and I continue to pray for strength and courage as we navigate this new path. Having Rob as my partner through this journey has been incredible, he’s been invaluable for my healing.
Thanks for the continued support & encouragement. I cannot image going through this challenge without my family, friends and colleagues love. Very grateful. 🤍
So glad you are progressing so well. My neuropathy is still an issue but because I also have diabetes it complicates things. It has been 2 years since I was diagnosed and most days I forget I am I am a cancer survivor . Good vibes from PA and lots of prayers. Aunt Bernie.
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